Alveolar Capillary Dysplasia (ACD) Association
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*** AUGUST 2014 UPDATE *** The ACDA is excited to announce that we are now a non-profit 501(c)3 organization as approved by the United States Internal Revenue Service. Until we have the capability on the website to accept tax deductible donations, please mail donations to:


The Alveolar Capillary Dysplasia Association
c/o Donna Hanson, Treasurer
5902 Marcie Court
Garland, TX 75044-4958
United States

Checks should be made payable to

“The Alveolar Capillary Dysplasia Association”

Thank you!

Updates to this website are being planned to reflect our new status as a non-profit.

ACD Association
The Alveolar Capillary Dysplasia Association (ACDA) is a group of parents throughout the world who has experienced a common tragedy - the death of a baby due to Alveolar Capillary Dysplasia (ACD).  The purpose of the ACDA is to gather and share information, provide a supportive environment to families and encourage research related to ACD.  This site is the foundation of a support system and database for both families and physicians throughout the world.  There is no religious affiliation and there are no membership dues or fees. To register, click here.

The ACDA publishes newsletters, encourages fundraising activities, supports on-going medical research and maintains a list of medical journal articles related to ACD. It is our hope that these efforts will culminate in finding the cause and ultimately a cure for ACD.

NOTE: There is a critical need for patient tissue samples to improve the success of on-going ACD research. For more information, please click here











The ACDA Brochure has been updated and has a wonderful new look thanks to ACDA mom Michaela Oltmans. *** Update, the ACDA Brochure is now also available in ITALIAN (a big Thank You to ACDA mom Federica di Paolo) *** If anyone wants to translate to other languages, we will add them to the website. If you want a closer look or want to print your own, click here ENGLISH or ITALIAN.







March 2012: Marleigh's Story - an ACD Documentary by Emily Meisner

ACD Documentary

Note: File is large and will take a minute to open.