The Alveolar Capillary Dysplasia Association (ACDA) is a group of parents throughout the world who has experienced a common tragedy - the death of a baby due to Alveolar Capillary Dysplasia (ACD).  The purpose of the ACDA is to gather and share information, provide a supportive environment to families and encourage research related to ACD.  This site is the foundation of a support system and database for both families and physicians throughout the world.  There is no religious affiliation and there are no membership dues or fees. To register, click here.

The ACDA publishes newsletters, encourages fundraising activities, supports on-going medical research and maintains a list of medical journal articles related to ACD. It is our hope that these efforts will culminate in finding the cause and ultimately a cure for ACD.

NOTE: There is a critical need for patient tissue samples to improve the success of on-going ACD research. For more information, please click here