We try to provide as much help and support as possible to families who have suffered the pain of losing a child to ACD. There are many other organizations who offer complementary support services. Below is a list of links to support organizations that you may find helpful.

United Kingdom

Rare Disease UK (RDUK)
www.raredisease.org.uk/

The Stillborn and Neonatal Death Society (SANDS)
www.uk-sands.org

United States Of America

The National Organization for Rare Disorders (NORD)
www.rarediseases.org

The Breath of Life Project (for Physicians and Health Care Providers)
http://breathoflifeproject.com/

Neonatal Diseases and Abnormalities
http://www.facmed.unam.mx/publicaciones/otraspub/gea-premioARB/folico/karol.htm

Extracorporeal Life Support Organization (ELSO)
http://www.med.umich.edu/ecmo

Neonatology on the web
www.neonatology.org

Mommies Enduring Neonatal Death
http://home.mend.org

Subsequent Pregnancy After a Loss Support (SPALS)
www.spals.com

Family Support Network of North Carolina
www.fsnnc.org